Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives

Basit Öğe Kaydı
dc.authorideren, tuba/0000-0001-5471-0663
dc.authoridOzyoruk, Derya/0000-0002-9615-6522
dc.authoridAksoy, Başak Adaklı/0000-0001-8338-2101
dc.authoridözdemir, sonay incesoy/0000-0003-2863-901X
dc.authoridKebudi, Rejin/0000-0003-4344-8174
dc.authoridKeskin Yildirim, Zuhal/0000-0001-8689-4014
dc.authorwosideren, tuba/JTU-4270-2023
dc.authorwosidErbey, Fatih/AAU-8066-2020
dc.authorwosidÖzyörük, Derya/H-2698-2012
dc.authorwosidOzyoruk, Derya/AAG-5587-2019
dc.authorwosidOZGUVEN, ALI AYKAN/HKF-1737-2023
dc.authorwosidÇakır, Fatma/JFB-4905-2023
dc.authorwosidAksoy, Başak Adaklı/AAK-3627-2021
dc.contributor.authorIncesoy Ozdemir, Sonay
dc.contributor.authorTacyildiz, Nurdan
dc.contributor.authorVaran, Ali
dc.contributor.authorKebudi, Rejin
dc.contributor.authorZulfikar, Bulent
dc.contributor.authorCelkan, Tiraje
dc.contributor.authorSahin, Gurses
dc.date.accessioned2024-06-12T11:07:51Z
dc.date.available2024-06-12T11:07:51Z
dc.date.issued2020
dc.departmentTrakya Üniversitesien_US
dc.description.abstractAim: The main purpose of this study is to determine the current status of long-term follow-up (LTFU) for childhood cancer survivors and the challenges of LTFU for pediatric cancer survivors at pediatric oncology institutions in Turkey. Material and methods: A questionnaire was e-mailed to the directors of 33 pediatric oncology centers (POCs) registered in the Turkish Pediatric Oncology Group (TPOG). Of these 33 active TPOG institutions, 21 participated in the study and returned their completed questionnaires. Results: Only 1 of the 21 participating centers had a separate LTFU clinic. The remaining centers provided LTFU care for childhood cancer survivors at the pediatric oncology outpatient clinic. Of these centers, 17 (80.9%) reported difficulty in transition from the pediatric clinic to the adult clinic, 14 (66.6%) reported insufficient care providers, and 12 (57.1%) reported insufficient time and transportation problems. As neglected late effects, 16 (76.1%) centers reported psychosocial and getty job problems and 11 (52.3%) reported sexual and cognitive problems. None of the centers had their own LTFU guidelines for their daily LTFU practice. Conclusion: This study was the first to gain an overview of the needs of POCs and the gaps in survivorship services in Turkey. The results from this study will help to develop a national health care system and national guidelines for pediatric cancer survivors.en_US
dc.identifier.doi10.3906/sag-1911-193
dc.identifier.endpage1921en_US
dc.identifier.issn1300-0144
dc.identifier.issn1303-6165
dc.identifier.issue8en_US
dc.identifier.pmid32628434en_US
dc.identifier.scopus2-s2.0-85098798480en_US
dc.identifier.scopusqualityQ3en_US
dc.identifier.startpage1916en_US
dc.identifier.trdizinid535714en_US
dc.identifier.urihttps://doi.org/10.3906/sag-1911-193
dc.identifier.urihttps://search.trdizin.gov.tr/yayin/detay/535714
dc.identifier.urihttps://hdl.handle.net/20.500.14551/22193
dc.identifier.volume50en_US
dc.identifier.wosWOS:000600735500021en_US
dc.identifier.wosqualityQ4en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakTR-Dizinen_US
dc.indekslendigikaynakPubMeden_US
dc.language.isoenen_US
dc.publisherTubitak Scientific & Technological Research Council Turkeyen_US
dc.relation.ispartofTurkish Journal Of Medical Sciencesen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.subjectLong Term Follow-Upen_US
dc.subjectSurvivorshipen_US
dc.subjectPediatric Oncologyen_US
dc.subjectTurkeyen_US
dc.subjectChildhood-Canceren_US
dc.subjectSecondary Neoplasmsen_US
dc.subjectTransitionen_US
dc.subjectProgramsen_US
dc.subjectOncologyen_US
dc.subjectChildrenen_US
dc.subjectReformsen_US
dc.titleCross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectivesen_US
dc.typeArticleen_US

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